Earlier than getting my prognosis, it was actually scary, as a result of I at all times thought every breath might be my final and I would die in just a few years as a result of I used to be dropping lung perform quickly. 

Fortuitously, after my prognosis, I used to be related with an incredible pulmonary specialist who assured me my situation was treatable. This was the primary sense of hope I had in virtually a 12 months, since my well being journey started. 

I used to be instantly placed on immunosuppressive medication and despatched to pulmonary rehab—it was particularly essential to control my lung perform as a result of if I’d misplaced even a pair extra percentages, I must be on oxygen full-time.

The pulmonary rehab helped me to not solely be taught extra concerning the illness but additionally achieve a greater consciousness of my physique. The docs had been attempting to do all the things they might to maintain my lungs on the level they had been. Whereas they may by no means recuperate, we had been attempting to maintain issues from getting worse—which has confirmed to achieve success over time. 

It’s been almost a decade since my preliminary prognosis. After sticking to the right workout routines and supporting my lungs, I’ve now been in a position to keep off my treatment for 3 years with out decline. For that, I’m completely grateful. 

I’ve additionally been in a position to incorporate extra train into my routine to assist assist my complete physique well being. Since my illness causes weak point in my muscle mass, I’ve to go to the fitness center to construct up energy. I additionally push myself to do a sure strolling routine and transfer my physique—I attempt actually exhausting to do what I can to remain lively.